It's been a long haul. From being told 9 years ago I should consider disconnecting life support to raising an adult son all over again and going through all the difficulties in his adult life -- from diapers, to reading, to sexual awareness and now (at his age of 32) dealing with early troubled teen behaviour, it is draining to be doing this as I get closer to the age of 60.
I feel so guilty that I ahve begun to lose patience. I feel that I should be so very proud of his progress and my dedication and perseverance that I should not permit myself the morbid "luxury" of feeling resentment at having no friends, no social life and no finances to even get my hair or nails done professionally.
I am angered with my form of selfishness in these past few weeks, feeling I should be so pleased that he is cognizant and improved enough to change...and I should not enter the "pity party" of wanting to have a life for myself.
But alas, this is my struggle -- and I so very feel for the struggle that he faces every single day of his life. He remembers playing sports; he remembers having friends; he remembers having girls at his doorstep and now he has no one in his life but me. As a handsome young man, he has not had sexual contact or the companionship of female or male friends for over 9 years...yet he amazes me with his humour, his empathy and his willingness to pursue improvement despite the confused fog in which he is perhaps permanently trapped.
I love my young man, but I do wish there were help for us on the horizon. I fear for my own health with no respite coming my way.
Funding has been denied and the battle to secure psychiatric follow-up has taken 9 years. If he can remain stable for another 3 months, he will have at least some psychiatric involvement.
I ask that anyone reading this pray for the both of us, and thanks in advance for that thoughtfulness from strangers.
I'll pray for you.
ReplyDeleteHave you gone to the Brain Injury Association in your state? Sometimes the programs they have can offer companionship and understanding for the survivor and the family member as well. Just a thought...